I imagine we are all feeling incongruent these days. I think it is one of the things that throws me off the most. We have all this time we weren't counting on, but we can't use it to travel, visit family, or shop for projects. More free time. Less freedom. I can have a moment of life or death panic for my kids after watching the news, and then five minutes later, I am scolding them for something ridiculous. I am both praying for friends with scary symptoms while scrolling through hysterical memes on Facebook. (People are just so clever!) This week has me especially off balance. They are saying it could be the worst two weeks. The Peak. It is also when the novelty of school...and stores... and movies... and hang outs...and church being cancelled seems to have worn off for the girls. Just when we should "lock the doors and pull down the shades" they have decided they can't stand it any more. But stand it we must. Just this week I had a flashback to when the tsunami hit in 2004. All we could do was watch in horror. Seriously, while it happened, that was all Continue Reading
How we are surviving the quarantine…so far.
There are reasons this site is called Wheel Life Adventures. Our girls haven't sat still a day in their lives. They were born feisty and stayed that way. Some people like to say it has worked to their benefit. It has certainly kept us on our toes...and on the move. First, some background. The girls have cerebral palsy as a result of prematurity. They were born at 30 weeks and struggled to breathe with immature lungs. The lack of oxygen to the outermost parts of their brains caused the loss of those cells. That can result in varying types and degrees of cerebral palsy. The fact that they are twins did not cause the similar cerebral palsy. In fact, doctors were surprised how similar they stayed as they developed. While they are not exactly the same, they do have a lot in common. I am not sure which was harder for us to swallow, the loss of motor coordination (they both drive power wheelchairs) or the slowly revealed struggle to read and write. Obviously there is a whole lot more to their stories, but the current status is that our girls like to have plans, Continue Reading
