Archives for March 2019

People always ask me why we drive about five hours to Lake George NY for adaptive skiing at Double H ranch. After all, it’s less than two hours to the Pocono mountains for us. This is it, right here: We have had more changes than I can count over the past few years... No sooner did we move to a one floor home and auction off my parents’ home and household items than we found each of our oldest two graduated college and our twins graduated high school. The eldest married, our goddaughter married, GRAMMY married (crazy kids💁‍♀️) and now our middle daughter is engaged to be married shortly.  We have sought a new primary care doctor and left the pediatricians. Currently we’re researching the ideal medical center to oversee their care as adults. Visits to numerous post high school day programs and habilitation opportunities are our new pastime as our time in the educational system comes to a close. We continue to desperately work to understand the social security system, waiver system and all the forms and paperwork that go with them. As a result, we attend Continue Reading